In previous posts, I have mentioned about my son and his struggles. I discussed evaluations and specialists and his journey through Early Intervention. I shared those struggles because people don’t seem to be aware of just how common problems are. They think that these types of struggles are embarrassing or show some level of failure on their part. I even questioned if I was failing him and that was why he was struggling with words. It’s natural as a parent to feel like they are totally failing when something is going wrong with their child. However, I wasn’t failing him; I was fighting for him.
When you tell people that your son is in the special needs program at their school, you get a few different reactions. You may get a look of pity; poor you for having to deal with that burden. You may get questions interest; well, what’s wrong with them and what is their diagnosis. You may get questions of how to avoid it; do you think if you spent less time working that this could have been avoided and is this something I can avoid? You may get questions of your stance on medicating them. Sometimes you even get a look; the look of distaste that is aimed directly at your child.
My son still has his struggles. He has an infinitely better vocabulary that when he started this journey. He can say sentences that clearly state what he wants (if he has the words for it), he can answer basic questions, and he can show that he actually has a hilarious sense of humor and personality. He cannot always use his language effectively. He still struggles with expressing what he wants, which leads to hours long tantrums. He cannot really think in the abstract but he excels in any fact based knowledge. He has no impulse control at all, a shorter attention span than most almost 4 year old children may have (unless it comes to something he stays fully fixated on), and pinches himself/pulls out his eyelashes. But most importantly, he is my George and none of this matters to me when he is curled up in arms, struggling to tell me the story that he wants to.
I am a mama bear, some would even say to an extreme. I will fight for him but luckily I haven’t had to yet. His preschool, which gave him another year in the program with interim speech therapy until they could test him fully, never made me fight for him because they fought for him. I know it may not always be easy and this isn’t the case for everyone, but right now his entire team is working with us to ensure he is getting exactly what he needs, and I couldn’t be more grateful for that.
To answer the typical questions I get, here it is. No, there is no diagnosis yet though early reports show he’s borderline on the autism spectrum and may have apraxia, which is often wrongly diagnosed as autism. No, there is nothing that I could have done differently. This is my son and as quirky and OCD he may seem to you, he is who he is and I love him and accept him for that and you should to. I should not be pitied because I have an amazing and intelligent son and everyone should be as lucky and I will do whatever I can for him. Finally, no I am not going to medicate him unless there is something that absolutely needs it. I don’t like the idea of messing with the chemical makeup of a brain that has not fully developed and that there are a lot of incredible therapies that can help without medication. Neuroscience is a field that is always evolving as is the understanding in cognitive psychology and I have more faith in those therapies than I do with pills. However, that is my personal choice and I don’t push that on others or judge them for their choice to medicate anymore than I would about anything else in their life that is really none of my business. I just answered the question that you asked.
At the end of the day, any good parent is going to do whatever it takes to give their child the best life possible. They will fight for them, send them to the best school for them, and make sure that they have everything that they need to survive and be happy. Some parents have more struggles than others, but it’s not a contest and parents need to stop treating it as if it is. As long as you love your child and do whatever you can to give them the best life possible, you are a winning parent. It can be hard, but never forget that.